Conclusions

Among patients who received their first diagnosis of IPF at an enrolling center in the IPF-PRO Registry:
- Approximately 50% had a delay of >1 year between symptom onset and diagnosis of IPF
- Approximately 80% were diagnosed with IPF within a year of imaging evidence of pulmonary fibrosis
- Cardiac conditions were more frequent in patients with a time to diagnosis >1 year.
Despite improved awareness of IPF, there remains a long period from symptom onset to diagnosis in a large proportion of patients. Getting an HRCT scan performed is a critical step in the diagnostic process.