Results

Respondent characteristics

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Table 1

NASH, non-alcoholic steatohepatitis.

Initial diagnosis

  • Respondents often reported that nuanced symptoms (fatigue 47%, loss of appetite 42%, nausea 40%) prompted them to seek diagnosis
  • Participants reported undergoing a range of tests at the time of initial diagnosis

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Figure 1

CT, computed tomography; MRE, magnetic resonance elastography; MRI, magnetic resonance imaging.

Lifestyle impacts

  • NASH was reported to significantly impact patients’ lives in several areas, across all stages of disease

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Figure 2

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Figure 3

Terms are written using person-first language, rather than reflecting the exact wording of the survey.

Understanding of disease

  • 99% of respondents reported conducting their own research, but two-thirds of respondents reported being overwhelmed by the amount of available information
  • Most respondents reported understanding the disease severity at diagnosis
  • Figure 4
  • Less than half of all respondents fully understood their diagnosis
  • Figure 5

NASH, non-alcoholic steatohepatitis.

Implementation of lifestyle changes

  • Patients were highly motivated to implement lifestyle changes
  • Stage 1 patients were more likely to rate themselves as highly motivated if they knew the risk of developing cirrhosis
  • Figure 6
  • Patients reported finding lifestyle changes highly challenging, but believed that they are very successful in their implementation
  • Patient caregivers were more likely to report that the patients they care for found lifestyle changes challenging than the patients themselves
  • Figure 7
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